LATEST NEWS

Dr. David Tuller & Professor Chris Ponting - Newry

Join us!
Dr Tuller & Prof Ponting tackle M.E. stigma, bad science & DecodeME insights. Real research-real hope for Northern Ireland patients.

Saturday, 8th November 2025 - 7.00pm to 8:30pm

Check-in from 6:30pm

Free parking at venue.

Clear accessibility to meeting room on ground-floor level.

Location - Mourne Country Hotel52 Belfast Road, Newry, BT34 1TB

Book through Eventbrite - Here

For 14 years, Hope 4 ME & Fibro NI has campaigned for specialist M.E. services in Northern Ireland and championed our members to take part in the DecodeME study, placing N.I. patients at the heart of world-leading ME research.

We are delighted to welcome Dr. David Tuller back to Northern Ireland, with Prof Chris Ponting (via live link) as they explore how flawed research has fueled stigma, disbelief, and poor care — and how patient-centered science is transforming the understanding of M.E.

Q&A session will be facilitated- don't miss this unique opportunity to hear directly from the experts and have your questions answered.

Light refreshments available from 6.30pm (free for charity members or £5 payable on the night for non-members)

After the speaker presentations join us for the official launch of our new website!

Designed by patients and featuring co-produced materials with the HSC Clinical Education Centre (HSCCEC) and General Practice Northern Ireland (GPNI) and more!

The site offers trusted resources, and combines lived experience with clinical insight, and provides accessible and downloadable guidance for patients, carers, and practitioners alike.

We will demonstrate key features and outline its role in improving understanding of Myalgic Encephalomyelitis (ME) Fibromyalgia and Long Covid-induced M.E., and how this initiative aims to support better patient outcomes across Northern Ireland.

Frequently asked questions:

Q. Should attendees take infection control measures?
A. Attendees are encouraged to wear a face mask for the safety of all participants. Hand sanitiser will be provided. Please refrain from attending if you are experiencing any cold or flu-like symptoms.

Q. Do you need to lie down due to medical reasons (ME/POTS/OI) during the event?
A. Please let us know in advance and a comfortable camp bed will be made available at the back of the meeting room. Patients must supply own pillow and blanket if required.

Accessibility
Clear accessibility for wheelchair users as meeting room is on ground floor.

19/10/2026