TESTIMONIAL
What Our Members Say
We’re so grateful for the kind words and encouragement shared by our members and supporters. Your feedback reminds us why we do what we do — bringing hope, connection, and understanding to everyone affected by M.E., Fibromyalgia and Post-Covid M.E., across Northern Ireland.
The support from Hope 4 M.E & Fibro N.I is excellent and always has been. I would advise anyone with ME or Fibro to join. They've been particularly good during this Covid crisis. I'm housebound & couldn't access groceries, social workers weren't accessible. I was badly stuck until the charity made sure I was put into contact with the community hub and got help with groceries for myself and my two kids.
Aileen McCulloughOmagh
It's more than a group it's One Big Family,
Very supportive, Always there for you and very active, campaigning for Awareness, and there to help anyone suffering...
Armagh
Thank you to joan and the charity for the emotional and financial support I received during the covid-19 pandemic. I was very lucky to have received financial support to get electricity for my home as i could not go out. I can't thank Joan and all the patients who carried me through the pandemic panic.
Sabrina O’HareNewry
This group is very informative and supportive always and has been especially lifesaving during these months of covid 19 lockdown with informative and sociable Zoom meetings.Made life liveable!
Rosella McCormackNewry
I was delighted to find this charity. It's run by people who have ME, fibromyalgia, or have family affected by these conditions. They provide a wonderful support and advice service, and also work tirelessly to educate medical professionals.
These conditions are so misunderstood, so it is fantastic to have people who know what it's like. There are monthly support group meetings, and if you are unable to attend then members can watch the meetings online
Portstewart
This group is run by patients for patients with ME and Fibro. As an ME patient who has experienced the worst from NHS neurological treatment over my condition I can honestly say this group saved my life. The information, training and support they provide is invaluable to patients, carers and health care professionals and decision makers. The help and support they've also provided to patients during the Covid 19 pandemic has been immeasurable given that the committee all have the conditions themselves. Thank you Hope 4 ME and Fibro Northern Ireland.
Gary CampionBelfast
Have received great support from this organisation particularly at the start of my journey when I had no where else to turn.
It continually seeks out new information and advice to share on its web page & FB.
Belfast
I have been a member of Hope since September last year I think, I walked in nervous and anxious. I sat down and haven't looked back. I've learnt so much from the monthly meetings both face to face and now zoom. I was able to avail of the Covid-19 emergency funding which allowed me to order Wiltshire Farm Foods meals and desserts for days when I cannot make anything or nobody is home to make me something. I also had some money left over and I ordered activity painting kits for my 8yr old daughter who has ADHD and cannot understand having to stay away from others. I am very grateful for everything Joan and the team have done for me past, present and future.
Debbie O’NeillNewcastle
Campaigning for services in Northern Ireland, educating the medical profession and the general public bit by bit on the effects of these often misunderstood conditions. This group has become a major player in raising the profile locally, regionally, nationally and internationally..
It’s done with a bit of banter at the same time, good support and wanting better things for all. (understanding, care, "first do no harm" ensuring that is foremost in medical professional's minds)
Meigh
A supportive online community, plus effective campaigning for better medical education and care. Laughter as well.
Dr. Olivia BeattieBelfast
Great support and it's open to everyone. Monthly meetings, educational events and conferences are all organised by this charity. I'm housebound but am able to watch speakers and experts at the meetings. Glad to recommend these volunteers who all work so hard on behalf of those who are sick.
Agnes ScottBallymoney
I've found all the people involved in this charity very caring and helpful... I have turned to them several times for advice and support and they have always went the extra mile to help !!!! Couldn't speak highly enough about it !!!
Andrea QuiggNewcastle
Above and beyond. That is what these people do. They go above and beyond to spread awareness, to help others, to educate those in the medical field and further.
I have become a member on Facebook and go to monthly meetings when I can. They are invaluable.
Kilkeel
Great site, very informative & you can ask any questions on ME or Fibromyalgia & you always get someone to help.
Helen KeenanNewry
This charity provides much needed support for me. I have had ME for twenty years and it was the first group to give me clarity on my condition as all GPs that I had consultations with were not fully aware of how to diagnose and treat it. It made me realise that there many fellow sufferers all needing guidance from the health service in order to prevent GPs recommending treatments that usually worsen the symptoms.
Joan McParland, the founder of the charity and also a sufferer, works tirelessly to raise the profile of the condition within the Medical world. As the charity is self funding Joan organises fund raising events in order to provide money for much needed research on this awful debilitating condition which has yet no cure.
Any donation would be greatly appreciated by the whole ME community.
Bangor
Isolation has an effect which can lead to some taking their own life. Hope 4 M.E. helps me keep connected to people who I know understand and therefore keeps me living with hope.
Pete RobertsBangor
There is so little support out there for families affected by this terrible condition. Joan and her team have always been there for those affected, often at her own expense.
It is often difficult for small charities like this financially yet Hope 4 M.E. and fibromyalgia always steps up to the mark to provide Hope and support for those most in need. Thank you!
Belfast
Joan and the team at Hope 4 M.E and fibromyalgia have been my lifeline and saved me from becoming much more unwell. Having others suffering these illnesses allows empathy, understanding and invaluable advice.
The charity develops education and awareness events to teach those in the health care profession, as ME and fibro are so poorly diagnosis and treated.
A fantastic charity with so much kindness and consideration. I cannot recommend them highly enough.
Hillsborough
A lifeline that has educated and supported me through my daughter's battle with ME. Without this charity we would be lost! I am so grateful for the opportunity to help educate our paediatrician, physio and OT.
Ann-Marie WattNewry
A charity dedicated to educating health professionals about ME. They do a wonderful job supporting people with this little known disease.
Laura WhittingtonBristol
Amazing charity, Joan is very helpful, friendly and has helped me a lot, even though she doesn't know me very well. Thankyou Joan
Marie FallonNewry
Having nowhere to turn for help,finding the group helped me to come to terms with my diagnosis' .The information and practical help given by all at Hope 4 M.E. and Fibromyalgia team is invaluable,many thanks guys.
Without this charity, I wouldn't be here.
Warrenpoint
This Charity diligently supports those of us who have Fibromyalgia and/or M.E. The selfless dedication and professionalism shown by its hard working team have gained us the support of the medical profession and of Stormont itself! I am privileged to be a member and highly commend its aim and HOPE that a cure for both diseases is realised.
Belfast
This charity gives us what it says... HOPE! We now have a voice.
Hillsborough
The best campaign group I've come across and I lived with the illness in England for ten years. The dedication of its members is unsurpassed.
Debbie DebooMoira
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