Severe M.E Day 2025 Causeway Coast and Glens

Causeway Coast & Glens Borough Council lit up their Civic Headquarters in blue to mark Severe ME. Day, 8th August 2025.

Severe M.E. is being marked in Northern Ireland today to raise awareness for people here living with the most severe form of Myalgic Encephalomyelitis (ME)

25% of all adults and young people with #ME endure years and decades of being bed-bound, unable to tolerate light or sound and more, and are hidden from the world.

There are no specialist #ME services in N.I.

World ME Alliance explain why it is vital to raise awareness for the sickest in our community on 8th August :

#SevereMEDay

"Around 25% of people with ME/CFS experience severe or very severe symptoms.

These individuals may:

- Be unable to speak or tolerate conversation

- Need assistance with all aspects of daily care

- Experience intense pain and energy loss, gastrointestinal issues, and orthostatic intolerance

- Be unable to tolerate standard medical environments or interventions

Despite their level of disability, they are frequently overlooked by healthcare systems and society."