Robbie Butler - World ME Day 2025 Members Statement

Robbie Butler MLA, Members' Statement - Recognition in the Assembly on 12th May, World ME Awareness Day 2025 Robbie delivered a Members’ Statement in the Northern Ireland Assembly that shone a spotlight on the work of Hope 4 ME & Fibro Northern Ireland and the urgent need for proper ME services.

Mr. Butler praised the charity for:

Raising awareness of the illness and its life-changing impact.
Campaigning for specialist ME services in Northern Ireland, where none currently exist.
Bringing world-leading clinicians and researchers to our conferences to educate healthcare professionals.
Supporting families and patients, ensuring they are not left behind.

He reminded colleagues that over 7,000 people in Northern Ireland live with ME, including children and young people, and called for urgent attention to address the ongoing lack of care and support.

This recognition comes after 14 years of our campaigning, during which we have:

Hosted 16 major conferences.
Invested funds in biomedical research.
Continued to give patients hope by keeping ME firmly on the political agenda.

We are very grateful to Robbie Butler MLA for his support over many years and for using his voice to speak up for people with M.E. and Fibromyalgia, and for recognising the dedication of our members and supporters.

📺 You can watch his full statement here.