My Full Reality: Delivery Plan for ME/CFS is published

My Full Reality: Delivery Plan for ME/CFS is published.

We are glad to see ME/CFS being acknowledged as a serious, long-term condition with significant impact—an important step toward shifting public and clinical attitudes.

Read full plan Here

Hope 4 ME & Fibro Northern Ireland Charity Response.

Huge thanks to our Trustee, Linda Campbell the only voice representing Northern Ireland patients on the ‘Living With ME/CFS Working Group’, helping shape the original Plan.

The DHSC plans to lead a public awareness campaign to improve understanding of ME/CFS.
We would hope this will help build on the progress we've made already in Northern Ireland from two Health Ministers making public statements on M.E. for World M.E. Day in 2024 and 2025.

The Minister for Health NI video See here:

Discussions are underway about possibly prescribing a specialist service for very severe ME via the Secretary of State - this cannot happen soon enough for Northern Ireland too!

We are grateful to the 21 MLAs who have co-signed our letter to Minister Nesbitt concerning the Delivery Plan.

Quick Summary-

Plan is a step forward, but lacks ambition and accountability
Still no strategic research plan or ME research hub
Research underfunded; bias and structural issues remain
No mandatory training for healthcare professionals
Education modules risk being outdated or ignored
Children, severe ME patients, and carers still face serious gaps
Many actions are vague or depend on future decisions

In conclusion:

We will continue pushing our CPD-certified M.E. educational resources, providing education and awareness events for medical and nursing students in QUB and Ulster University and keep pressing for improvement in all above areas and for proper implementation of NICE Guideline for ME/CFS NG206 in Northern Ireland